Participating in the DECODE VRL study gives you the opportunity to contribute to researching and improving the diagnosis of vitreoretinal lymphoma (blood cancer in the eye). Even though your participation is primarily for research and has no direct health benefit for you, the diagnosis and investigation may provide you with information about health conditions that may be important to better understand the condition. In addition, the research results could benefit future patients and improve the treatment of the clinical picture.
The removal of a vitreous body sample is part of clinical care for suspected lymphoma in the eye and is carried out as part of an operation (vitrectomy) to confirm or reject the lymphoma diagnosis. The material taken is examined for molecular markers to enable reliable diagnosis of VRL.
Study participation lasts a total of 24 months. After taking the sample, four visits to the eye clinic are regularly planned as part of the necessary lymphoma aftercare. If no lymphoma is detected during the tissue examination, there will be two telephone calls about the study by the leading study center in Lübeck after one year and two years after the sample has been obtained.
Regular examinations, insofar as the diagnosis of lymphoma has been confirmed, include, in addition to a survey on disease-relevant facts, clinical investigations such as determination of visual acuity (BCVA), measurement of intraocular pressure (IOP), fundus copy (ocular background examination) and photography, optical coherence tomography (OCT) and fluorescence angiography. These tests are routine aftercare tests and are performed on both eyes.
The treatment of an identified lymphoma disease is not part of the study. However, the treatments carried out and the treatment success are recorded in the study documentation.
The treatment of an identified lymphoma disease is not part of the study. However, the treatments carried out and the treatment success are recorded in the study documentation.
The DECODE VRL study is a multicenter initiative that includes more than 13 leading eye clinics across Germany. These sample-collecting centers ensure that patients from different regions have access to the most advanced diagnostic methods. Each center brings specific expertise:
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Klinik für Augenheilkunde, Universitätsklinikum Ulm
Prittwitzstraße 43, 89075 Ulm
+49 (0)731 500 59001
https://www.uniklinik-ulm.de/augenheilkunde.html
sekretariat.augenklinik@uniklinik-ulm.de
Augenklinik, Klinik Sulzbach des Knappschaftsklinikum Saar, Klaus Heimann Eye Research Institute (KHERI)
An der Klinik 10, 66280 Sulzbach
+49 (0)6897 574 1121
https://augenklinik-sulzbach.de
augen@kksaar.de
Department für Augenheilkunde, Universitätsklinikum Tübingen
Elfriede-Aulhorn-Straße 7, 72076 Tübingen
+49 (0)70701 29 3730
https://www.medizin.uni-tuebingen.de/de/das-klinikum/einrichtungen/kliniken/augenklinik
augenklinik@med.unituebingen.de
Augenzentrum am St. Franziskus-Hospital Münster
Hohenzollernring 74, 48145 Münster
+49 (0)251 935 2711
https://augen-franziskus.de
terminvereinbarung@augen-franziskus.de
Klinik für Augenheilkunde, Universitätsklinikum Regensburg
Franz-Josef-Strauß-Allee 11, 93053 Regensburg
+49 (0)941 944 9210
https://www.ukr.de/pflege/stationen-polikliniken-funktionsbereiche/station-48/49-augenheilkunde-chirurgie
sekretariat.augen@ukr.de
Klinik für Augenheilkunde, Universitätsklinikum Schleswig-Holstein/ Campus Kiel
Arnold-Heller-Straße 3, 24105 Kiel
+49 (0)431 500 24202
https://www.uksh.de/augenklinik-kiel/
ambulanz.augenklinik.kiel@uksh.de
Klinik für Augenheilkunde, Charité – Universitätsmedizin Berlin, Campus Benjamin Franklin
Hindenburgdamm 30, 12203 Berlin
+49 (0)30 450 554 444
https://augenklinik.charite.de
augenambulanz-cbf@charite.de
Klinik für Augenheilkunde, Universitätsklinikum Schleswig-Holstein/Campus Lübeck
Ratzeburger Allee 160, 23538 Lübeck
+49 (0)451 500 43901
https://www.uksh.de/augenklinik-luebeck/
privatambulanz.augenklinik.luebeck@uksh.de
Klinik für Augenheilkunde, Universitätsklinikum Hamburg Eppendorf
Martinistrasse 52, 20246 Hamburg
+49 (0)40 7410 52305
https://www.uke.de/kliniken-institute/kliniken/augenheilkunde/index.html
augenklinik@uke.de
Klinik für Augenheilkunde, Universitätsklinikum Halle (Saale)
Ernst-Grube-Straße 40, 06120 Halle (Saale)
+49 (0)345 557 1878
https://www.umh.de/einrichtungen/kliniken-und-departments/augenheilkunde/patientinnen-und-patienten
sekretariat.augenklinik@uk-halle.de
Klinik für Augenheilkunde, Klinikum Chemnitz gGmbH
Flemmingstr. 2, 09116 Chemnitz
+49 (0)371 333-37050
https://www.klinikumchemnitz.de/kliniken-bereiche/kliniken/augenheilkunde
augenklinik@skc.de
Augenklinik, Universitätsmedizin Göttingen
Robert-Koch-Str. 40, 37075 Göttingen
+49 (0)551 3966789
https://augenklinik.umg.eu
augenheilkunde@med.uni-goettingen.de
Klinik für Augenheilkunde, Universitätsklinikum Freiburg
Killianstraße 5, 79106 Freiburg
+49 (0)761 270 40010
https://www.uniklinik-freiburg.de/augenklinik.html
augenklinik.direktion@uniklinik-freiburg.de
Augenklinik, Universitätsklinikum Würzburg
Joseph-Schneider-Strasse 11
+49 (0)931 201 20602
https://www.ukw.de/augenklinik/startseite/
augenklinik@ukw.de
Augenklinik, Universitätsklinikum Bonn
Ernst-Abbe-Straße 2, 53127 Bonn
+49 228 287 15505
https://www.ukbonn.de/augenklinik/
augenklinik@ukbonn.de
Augenklinik des Universitätsklinikum Heidelberg
Im Neuenheimer Feld 400, 69120 Heidelberg
+49 (0)6221 56 6999
https://www.klinikum.uni-heidelberg.de/kopfklinik-zentrum/augenklinik
augenklinik@med.uni-heidelberg.de
Augenklinik, Katharinenhospital des Klinikum Stuttgart
Kriegsbergstraße 60, 70174 Stuttgart
+49 (0)711 278 33100
https://www.klinikum-stuttgart.de/medizin-pflege/augenklinik
ambulanz.augenklinik@klinikum-stuttgart.de
Zentrum für Augenheilkunde, Universitätsklinikum Köln
Kerpener Str. 62, 50937 Köln
+49 (0)221 4313
https://augenklinik.uk-koeln.de
mvz-privat@uk-koeln.de
Augenklinik LMU Klinikum
Mathildenstraße 8, 80336 München
+49 (0)89 4400 53823
https://lmu-klinikum.de/augenklinik
augenklinik.termine@med.uni-muenchen.de
Klinik für Augenheilkunde, Universitätsklinikum Essen
Hufelandstr. 55, 45147 Essen
+49 (0)201 723 3569
https://augenklinik.uk-essen.de
auge@uk-essen.de
Whether as a patient, relative, medical professional colleague or supporter: Your involvement and interest are decisive for the success of the DECODE VRL study.
Contact us if you have any questions about the study, participation or the scientific background.
Liv Dollmann
Study coordination
Department of Ophthalmology, University Hospital Schleswig-Holstein
Lübeck Campus
Phone: +49 451 500-43911
email: liv.dollmann@uksh.de
Working together for better diagnosis and treatment of vitreoretinal lymphoma.
“Your support brings us one step closer to deciphering lymphoma in the eye”
